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1、HutchWorld:ClinicalstudyofComputer-mediatedSocialSupportforCancerPatientsandtheirCaregiversShellyFarnham,LiliCheng,LindaStone,KarenSyrjala,AnnMarieClark,JanetMeloraZaner-Godsey,ChristopherHibbelnAbramsSocialComputingGroup,MicrosoftResearchFredHutchinsonCancer
2、ResearchCenterOneMicrosoftWay1100FairviewAve.N.,B1-010Redmond,WA98052-6399USASeattle,WA98109-1024USA+14258828080+12066672992shellyf@microsoft.comaclark@fhcrc.comABSTRACTToaddresstheneedsofcancerpatientsandtheirToaddresstheneedsofcancerpatientsandtheircaregive
3、rs,MicrosoftResearchandtheFredHutchinsoncaregivers,MicrosoftResearchandtheFredHutchinsonCancerResearchCenterdevelopedanonlinecommunityCancerResearchCenterdevelopedHutchWorld,anonlineenvironment,HutchWorld.HutchWorldisaprivate,multi-communityenvironment,toprov
4、idecomputer-mediatedusercommunityenvironmentthatintegratessocialsocialandinformationalsupport.Inacontrolledclinicalinteractiontools,information,anddiversionaryactivities.study,wedeployedHutchWorldtobonemarrowtransplantInacontrolledclinicalstudy,weprovidedInte
5、rnetaccesspatientsandtheircaregiversandassessedtheimpactofandHutchWorldtotransplantpatientsandtheircaregiversInternetaccessandHutchWorldontheirqualityoflife.livinginoutpatientapartments,andtestedtheimpactonWefoundthatInternetaccessandtheuseofHutchWorldtheirqu
6、alityoflife.helpedtobufferstudyparticipantsagainstreductionsinlifeBackgroundsatisfactionandsocialsupportfollowingthetransplantImpactofsocialsupportonwell-beingprocedure.Inparticular,participantsusedtheInternettoInformationalandemotionalsupportenhancepeople’ss
7、eekoutsupportfromfamilyandfriends.psychologicalwell-being,particularlyintimesofstress[2,Keywords18,19].PatientsandtheircaregiversexperiencehighOnlinecommunities,socialsupport,empiricalresearch,levelsofpsychologicaldistressintheyearfollowingcomputer-mediatedco
8、mmunication,healthtransplantation[1,5,13,16],andtheirsocialinteractionsINTRODUCTIONallowthemtocopemoreeffectivelywiththeirillnessPastresearchhasshownthatpeoplebenefitfromsocialandthrought
