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1、财产归扣制度研究 REFLECTIONSONANUNMONJOURNEY:AFOLLOW-UPSTUDYOFLIFEMANAGEMENTOFSIXMOTHERSOFCHILDRENWITHDIVERSEDISABILITIESKateScorgieAzusaPacificUniversityandLorraineWilgoshUniversityofAlbertaThisqualitativefollow-upstudyexaminedlifemanagementstrategiesofparentsofchildrenwithdisabilities,whowereoriginallyi
2、nterviewedinthemid-1990s.Thepurposewastodeterminewhetherthelifemanagementstrategiesreportedintheoriginalstudywereconsistentacrossalmostadecadeoftime,andwhetherthematiccontentoflifemanagementstrategiesshiftedacrossfamilyandchildlife-cyclestages.Generally,thematicanalysisconfirmedthatparentlifemanage
3、mentthemesheldconstantacrosstimeandcircumstancesforthesixinterviewedmothers,withmanyofthestrategies,foundtobeeffectiveearlier,continuingtoprovevaluableineffectivelifemanagement.Raisingachildwithadisabilityintroducesmultiplestressorsthatarerelatedtoinitialdiagnosis,ambiguouschildprognosis,parentalro
4、lesandresponsibilities,aesstoandavailabilityofinformation,resourcesandservices,lossofrelationships,andday-to-dayunpredictability(Boss&Couden,xx;Hartshorne,xx;O’Brien,xx;Roper&Jackson,xx;Zaidman-Zait&Jamieson,xx).Inaddition,parentsofchildrenwithdisabilitiesmustraisetheirchildrenwithinthecontextofpow
5、erfulsocietaldiscoursethatdevaluesadultswithdisabilitiesand,therefore,holdslowexpectationsfortheultimate‘suess’ofparentingchildrenwithdisabilities(Green,xx,p.151).Inspiteofthesestressors,Green (xx)conductedastudyof81mothersofchildrenwithdisabilitiesandfoundthatthehasslesofcaringfortheirchildrendid
6、notresultinclinicallysignificantemotionaldistressinthemothers.Similarly,inastudyof55parentsofchildrenwithautism,Twoy,Connolly,andNovak (xx)foundthat,despitethedemandsofparentingtheirchildren,parentmeasuresofadaptationandcopingweresimilartothoseofparentsoftypicallydevelopingchildren,suggestingthatp
7、arentsofchildrenwithautismtendtoberesilientandhighlyadaptive(p.251).BernheimerandWeisner (xx)interviewed102parentsofchildrenwithdevelopmentaldelaysandfoundthenumberofaommodationsparentsmadeastheycaredforth
