资源描述:
《The Health and Well-Being of Caregivers of Children With Cerebral Palsy脑性瘫痪患儿照顾者的健康与幸福感》由会员上传分享,免费在线阅读,更多相关内容在学术论文-天天文库。
1、TheHealthandWell-BeingofCaregiversofChildrenWithCerebralPalsyParminderRaina,PhD*‡;MaureenO’Donnell,MD§;PeterRosenbaum,MD¶#;JamieBrehaut,PhD**;StephenD.Walter,PhD*;DianneRussell,MSc*¶#;MarilynSwinton,BSc¶;BinZhu,MSc*‡;andEllenWood,MD‡‡ABSTRACT.Objective.Mostchildrenenjoyhealthyphysicalandpsychol
2、ogicalhealthofadultcaregiversofchildhoodswithlittleneedforspecializedhealthcarechildrenwithCP.services.However,somechildrenexperiencedifficultiesMethods.Wedevelopedastressprocessmodelandinearlychildhoodandrequireaccesstoandutilizationappliedstructuralequationmodelingwithdatafromaofconsiderablehe
3、althcareresourcesovertime.AlthoughlargecohortofcaregiversofchildrenwithCP.Thisde-impairedmotorfunctionisthehallmarkofthecerebralsignallowedtheexaminationofthedirectandindirectpalsy(CP)syndromes,manychildrenwiththisdevelop-relationshipsbetweenachild’shealth,behaviorandmentdisorderalsoexperiencese
4、nsory,communicative,functionalstatus,caregivercharacteristics,socialsup-andintellectualimpairmentsandmayhavecomplexlim-ports,andfamilyfunctioningandtheoutcomesofcare-itationsinself-carefunctions.Althoughcaregivingisagivers’physicalandpsychologicalhealth.Families(nnormalpartofbeingtheparentofayo
5、ungchild,thisrole468)ofchildrenwithCPwererecruitedfrom19regionaltakesonanentirelydifferentsignificancewhenachildchildren’srehabilitationcentersthatprovideoutpatientexperiencesfunctionallimitationsandpossiblelong-disabilitymanagementandsupportsinOntario,Canada.termdependence.Oneofthemainchallenge
6、sforparentsThecurrentstudydrewonapopulationavailabletotheistomanagetheirchild’schronichealthproblemseffec-investigatorsfromapreviousstudy,theOntarioMotortivelyandjugglethisrolewiththerequirementsofev-Growthstudy,whichexploredpatternsofgrossmotorerydayliving.Consequently,thetaskofcaringforachildd
7、evelopmentinchildrenwithCP.Dataondemographicwithcomplexdisabilitiesathomemightbesomewhatvariablesandcaregivers’physicalandpsychologicaldauntingforcaregivers.Theprovisionofsuchcaremayhealthwereassessedusingstandardized,self-c