The Health and Well-Being of Caregivers of Children With Cerebral Palsy脑性瘫痪患儿照顾者的健康与幸福感

The Health and Well-Being of Caregivers of Children With Cerebral Palsy脑性瘫痪患儿照顾者的健康与幸福感

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时间:2019-08-08

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1、TheHealthandWell-BeingofCaregiversofChildrenWithCerebralPalsyParminderRaina,PhD*‡;MaureenO’Donnell,MD§;PeterRosenbaum,MD¶#;JamieBrehaut,PhD**;StephenD.Walter,PhD*;DianneRussell,MSc*¶#;MarilynSwinton,BSc¶;BinZhu,MSc*‡;andEllenWood,MD‡‡ABSTRACT.Objective.Mostchildrenenjoyhealthyphysicalandpsychol

2、ogicalhealthofadultcaregiversofchildhoodswithlittleneedforspecializedhealthcarechildrenwithCP.services.However,somechildrenexperiencedifficultiesMethods.Wedevelopedastressprocessmodelandinearlychildhoodandrequireaccesstoandutilizationappliedstructuralequationmodelingwithdatafromaofconsiderablehe

3、althcareresourcesovertime.AlthoughlargecohortofcaregiversofchildrenwithCP.Thisde-impairedmotorfunctionisthehallmarkofthecerebralsignallowedtheexaminationofthedirectandindirectpalsy(CP)syndromes,manychildrenwiththisdevelop-relationshipsbetweenachild’shealth,behaviorandmentdisorderalsoexperiencese

4、nsory,communicative,functionalstatus,caregivercharacteristics,socialsup-andintellectualimpairmentsandmayhavecomplexlim-ports,andfamilyfunctioningandtheoutcomesofcare-itationsinself-carefunctions.Althoughcaregivingisagivers’physicalandpsychologicalhealth.Families(nnormalpartofbeingtheparentofayo

5、ungchild,thisrole468)ofchildrenwithCPwererecruitedfrom19regionaltakesonanentirelydifferentsignificancewhenachildchildren’srehabilitationcentersthatprovideoutpatientexperiencesfunctionallimitationsandpossiblelong-disabilitymanagementandsupportsinOntario,Canada.termdependence.Oneofthemainchallenge

6、sforparentsThecurrentstudydrewonapopulationavailabletotheistomanagetheirchild’schronichealthproblemseffec-investigatorsfromapreviousstudy,theOntarioMotortivelyandjugglethisrolewiththerequirementsofev-Growthstudy,whichexploredpatternsofgrossmotorerydayliving.Consequently,thetaskofcaringforachildd

7、evelopmentinchildrenwithCP.Dataondemographicwithcomplexdisabilitiesathomemightbesomewhatvariablesandcaregivers’physicalandpsychologicaldauntingforcaregivers.Theprovisionofsuchcaremayhealthwereassessedusingstandardized,self-c

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